Dyskeratosis Congenita Outreach Pacific is a community of people in Australia and New Zealand linked by similar stories. We are a small group of patients, family members, medical specialists and other dedicated individuals who are here to raise community and clinical awareness of Dyskeratosis Congenita in Australia and New Zealand and provide support to those affected. On our website you can find doctors who specialise in caring for patients with DC, people with shared experiences who want to listen, and the latest in potential breakthroughs in research and therapy. If you or someone in your family is recently diagnosed, and if you’d like to be part of our community to be supported, share your story and have access to a variety of medical professionals, we encourage you to join us. We’d love to have you! We are here to help-– you are not alone.

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