This page provides links to articles and presentations of interest to the DC community. If you have any resources you think would be useful for this page, please email Pam Bayard on pam@dcopacific.org

Dyskeratosis Congenita and Telomere Biology Disorders: Diagnosis and Management Guidelines is now available in hard copy. If you do not have a copy and would like one, please contact DCOP President Pam Bayard on pam@dcopacific.org

Inherited bone marrow failure study for DC patients provided by the NIH.
http://www.marrowfailure.cancer.gov/

Article on DC and how it may help with Cancer.
http://www.techtimes.com/articles/16865/20141001/rare-gene-mutation-might-block-cancer-causing-cell-division.htm

The changing nature of what it means to be diagnosed by Dr Suneet Argarwal.
http://vector.childrenshospital.org/2015/02/the-changing-nature-of-what-it-means-to-be-diagnosed/

Professor Roger Reddell from our DCO Pacific medical board has set up a world first Australian Cancer Research Foundation Telomere Analysis Centre (ATAC).
https://jeansforgenesau.wordpress.com/2015/05/21/proudly-announcing-our-atac-facility-officially-open/

Webinar by Dr Roger Redell from Sydney Australia and Dr Suneet Agarwal from Boston America
http://go.perkinelmer.com/webmail/32222/160670549/13499f35f389cd6eeac97bf8109b8fa7

 

Disclaimer: Medicine is a constantly changing science and not all treatments are clearly established especially with such a rare disease. New research changes drug and treatment therapies daily. The authors, editors, and publisher of this website have used their best efforts to provide information that is up-to-date and accurate and is generally accepted within medical standards at the time of publication. However, as medical science is constantly changing and human error is always possible, the authors, editors, and publisher or any other party involved with the publication of this article do not warrant the information in this article is accurate or complete, nor are they responsible for omissions or errors in the article or for the results of using this information. They are also not responsible for any of the statements made by individuals posting their own stories or experiences on this site.

Dyskeratosis Congenita Outreach Pacific Inc shares medical and social networks with Dyskeratosis Congenita Outreach, Inc., however the groups are not legally or financially affiliated.